Saturday, October 23, 2010

Thursday, October 7, 2010

Updates

We have had a super busy fall around here. Lots of fun with friends and family. What a blessing to be able to do so many activities with Ellie. But it is also a blessing to be able to do some things without her, thanks to our nursing coverage. Adam and I have been able to go out as a couple; we enjoyed our first night away since Ellie was born. We have also been out with friends and on a few dates as well. It has really helped us feel more normal. Nursing coverage has opened up new experiences for the boys too. They are a part of a homeschool co-op this year, and Ellie is able to stay home with a nurse. The boys are learning a lot, and Ellie is able to do her PT and daily routine. It is really nice for all of us. I do not regret the years I took care of her with no help, as we bonded a lot and I felt very confident in her care. But I am also grateful that we decided to pursue nursing help, as it has helped us achieve new goals in our lives too :)



Saturday, September 18, 2010

Ellie is Three!

This past Sunday we celebrated Eleanor's third birthday! She is doing better than ever, and is a blessing to all who meet her. Her health is stable, she is interactive, growing, and still super cute ;) She has come farther than anyone expected. Thanks be to God.











Thursday, August 19, 2010

Camping

Well, we passed another milestone we never thought we would reach: camping with Ellie! Last week we went to Family Camp with our church. It was a great week for our family.

Camping is something I never thought would be possible with Ellie. She has so much equipment, we worried about what we would do in case of emergency, we worried about the weather, we thought she was just too much work to take along. But over the past years and months, Ellie has proven to be stronger that we ever thought she would be, and her care is much less of a burden than it ever was. So we took the plunge and went camping!

We were able to borrow a camper that had A/C and pretty deluxe accommodations. We camped near friends that loved us and helped us in many ways. And there were friends everywhere to keep the boys occupied and entertained.

Our first camping trip: a success! We can't wait to go again :)







More photos are hosted on Facebook (public)

Thursday, July 8, 2010

Yup, it's July

Hey all, sorry for being so MIA. This summer has proven to be more difficult for me than the winter was. I guess the weather, the yearly activities, the dates on the calendar-they all remind me of last summer and all that took place.

I just don't have much to say. I am hurting. I am surviving. I am growing. I am relying on God's grace. I wish there was something deeper to say, but sometimes at the deepest of our suffering, we stop thinking in words and just... feel.

I do want to keep in touch with you all though. And I don't want my readers to go away. So here are some photos of summer activities for you to enjoy.

VI sports day: a special day for kids with vision problems. The boys were able to partake in the fun activities, and Ellie was able to watch and enjoy a special day.






Father/Son Camping Trip: The boys were able to go on a rustic camping experience with Adam and some friends.




Thursday, May 20, 2010

May Photos

We are having a fun month of May so far! The highlights have been several trips to Meijer Gardens, walks to the neighborhood park, and a Whitecaps game we attended with Ellie's school. Enjoy these pictures, and others in the photo album.





Thursday, May 13, 2010

Video *edited

I get a lot of requests for updated video of Ellie, so when she started talking today, I seized the opportunity. When I lay her in her crib to change her diaper, she immediately brightened and started chattering. Her talking and excitement often makes her muscles start to tense and contract, so sometimes her noises have undertones of discomfort mixed with happiness.

**eta: I fixed the video. Sorry it wasn't working for everyone.