Baby Update

Today we had the excitement of going in for a detailed ultrasound of the new baby. It was confirmed that we have another GIRL entering our family :)

The ultrasound went really well. Baby girl looks really healthy so far! The doctor seems really optimistic that the baby does not have the same symptoms as Eleanor. He thinks at this point the risk for the baby is really low.

She was moving a round quite a bit and we saw the mouth open and close a couple of times. We also saw her stomach which showed she has been swallowing. That was the most exciting part for me and Adam. We also saw the ankles which look really normal, as opposed to Ellie's "foot drop" which requires her to wear special foot braces.

The only thing to report was a very slight enlargement near her kidneys but it could be a result of an underdeveloped ureter system or something like that that a lot of babies have at this gestation. Doc was not too concerned, and I'm thinking it is one of those things that make people worry that really don't mean anything. We will pray for that issue to resolve.

Thank you for all of your prayers and encouraging comments so far. It really feels great to have the support of our family and friends. We put our trust in the Lord and in his goodness. We are so happy for the gift of another baby girl. We will keep updating as we learn more :)

More News

Ellie News
We have received all the results from Ellie's recent testing. All negative-Surprise, surprise :) We also got her MRI results which showed that yes, she still has white matter loss, but no, it is not getting progressively worse. It was not a surprise to me or Adam, as we know she is not getting worse, but I think it will be a good piece of information for the doctors. We go to the neurologist next week to go over all the results in detail and make a plan from here.

Ellie also had her first visit to Genetics. They really should have been following her from the beginning, but alas, some things fall through the cracks. We really did not learn anything new at this appointment, but we now have another smart doctor following Ellie's case. The Geneticist has already contacted various colleagues around the US to see if they have any ideas about Ellie's diagnosis. We'll let you know if anyone comes up with anything.

Ellie had a cold the last couple of weeks, and we are very happy to report that she kicked it without any additional meds or even a visit to the doctor! She handled this cold very well and it brings hope to us that she will be able to continue to do that in the future. Yay!

The House
The house is now listed for sale! It was a lot of work getting it ready, but it was very satisfying to see the end product. You can see the listing here. Let us know if you know anyone who may be interested ;)



Other news
In other news, our family is expecting a new addition at the end of August! We are all very excited, but of course a little nervous as well. I am being followed closely by a team of doctors, but we are not sure they will be able to tell us anything, as Ellie's condition is not really detectable by testing. We trust in our good God and in his providence. We know that he has a plan for our lives, one that is for his glory and for our good, no matter the health of this new baby. Please pray for our peace and for this unborn baby.