Ellie Update

Sorry it's been so long. Things are just sort of seeming normal now, but today I realized there have been a lot of changes we have not told you about.

Ellie seems to have made a leap of improvement this last week. She is awake and aware a LOT more. We think this is due to the craniosacral therapy, because it started last week after her appointment. Last Friday when she got home from her appointment, she was awake for 5 hours in the evening! Now, since that appointment, she has been more aware of simple things like a diaper change or being switched from one person's arms to another's. She has started to stir in her sleep, an arm raising toward her face, or a leg moving up and down in her sleep. She has had longer awake periods, and often more awake periods in a day too. She still has her times of sleeping for 8 hours straight during the day, but that is more rare than before.

This morning she woke up around 8 when I got up, and by 10:30 she was still awake so I thought I would try to rock her to sleep. So I tried. By 11, it was time to pump and she was still awake, so I had to put her in her crib. She is still awake! Noah is over there touching her :)

Her muscles just seem more in control, and she is having more spontaneous movement. We are really excited that when we pick her up there is some form to her, rather than being a floppy rag doll. She just feels so normal.

She saw her OT this week to get new foot splints. Her feet had grown out of the hospital ones.

She will repeat her hearing test the day after Christmas. Please pray for a miracle.

She has physical therapy once a week and craniosacral therapy once a week. All of her appointments and care are taking up a lot of our time, but we are really enjoying our time with her. Our family is so blessed to have her home with us.

Thank you all for your continued support and prayers. Thank you so much for the gifts that are helping us pay for her therapy. I hope you are encouraged that it is truly helping her progress.

love and peace-
Emily