But today we found out that the latest batch of tests came up negative. We were testing for a family of peripheral nerve disorders under the Charcot-Marie-Tooth umbrella, along with one that really sounded like Ellie, called Congenital Hypomyelination Neuropathy.
We knew we would be happy with the results either way. If they were positive, we would finally have an answer for Ellie and could move onto the next stage of research and knowing the future. If they were negative, there would still be a chance that her disease is an isolated incident and would not affect the future of our family.
So, we praise God that we were able to find out the results of the testing (finally) and press on to find the answers for Ellie and our family.
Wow! Praise God for that. Good to see you yesterday, by the way. Ellie is sooo big!!!
ReplyDeleteWe are thankful for answers.
ReplyDeleteEven these answers that don't really give answers!
Hopefully this leaves room for some good news in the future.....
Trusting God regardless,
Your Friends the Hunter Clan
It seems that God is once again saying "Trust Me. This child is special." If you had a specific diagnosis, we might limit her abilities. I am reminded today through your posting that God has a plan!
ReplyDeleteLove and Hugs dear Friends,
Betsy