I'm sorry it has been long. We have just been busy doing normal family things like grocery shopping, walks, and watching the olympics. We spend a lot of time kissing Ellie's cheeks and thanking God that we are not in the hospital and that we are home enjoying time as a family.
Here is a picture of Ellie doing a normal baby thing-ready to go for a ride in the stroller. Adam and I have been going for jogs in the evening while Noah rides his bike and Seth and Ellie ride in the jogging stroller. It has been a lot of fun and a great stress reliever for the whole family!
Ellie has been feeling well since they put her on stronger antibiotics. We are all preparing for the surgery this week. I have been on the phone non-stop with doctors trying to coordinate a nerve biopsy for Ellie while she is under for the bladder surgery. A nerve biopsy was the next step in Ellie's testing. It was always understood that it was an option for testing "if Ellie ever had a surgery where she was put under anesthesia." Since there were no surgeries on the horizon, we sort of put it on the back burner. Well, all of a sudden this surgery is scheduled, so I started talking to doctors about getting it done at the same time. So, things are in the works, but it will take a lot of things coming together at the right time to actually happen. We will see.
The lab will be looking at the myelin in the nerves to see if it is normal or not. If there is a lack of myelin, it means she probably does have a peripheral nerve disorder and we will continue looking down that path. If it turns out to be normal, we need to change directions and reevaluate her testing path.
Please pray for the surgery on Thursday: that it will go smoothly, that Ellie's respiratory issues will not cause complications, and that the surgeons will be able to do the nerve biopsy at the same time. I will update after the surgery to let you know how things went.
Ellie's story is not finished yet. We know that God has great plans for her. We are just so happy to be along for the ride.
peace,
Emily for the Vedras
Hey fam, we are going to pray continually for Thursday. Let us know what we can do to help that day, or before... or after... love to all 5.
ReplyDeleteI hope all goes well on Thursday! I LOVE the pics! I can't believe she's almost 1 already! Look at those teeth, and her hair looks strawberry blond in those pics! It's starting to get long too! Pretty soon you'll be able to do piggy tails! HUGS and miss ya!
ReplyDeleteWow, she is getting so big!!! Will pray the biopsy can get done during the surgery....
ReplyDeleteThanks for the update! I'll be praying.
ReplyDeleteAs always, love the pictures, and the update. Definitely will be praying for surgery on Thursday. So glad you are able to enjoy the beautiful weather. Your testimony continues to glorify God!!
ReplyDeleteHi Em,
ReplyDeleteThaks for the pictures and the update.
Praying daily for all of you and also for Ellie's upcoming surgery.
Love, Julie & Philip
Ellie will be in my prayers, especially Thursday. You guys are doing such a great job with her...stay faithful!
ReplyDeleteThat Ellie is one beautiful baby! You're all in our prayers! Waiting for an update...
ReplyDeleteHAPPY BIRTHDAY EMILY!!! (I'll call later when I have your rock star brother home to help me sing a little diddy.)
ReplyDeleteThanks for the update. I have been thinking about the surgery this week and hoping to get some news leading up to it. Ellie looks great. I am so glad to see her feeling well again! I'll be praying for a successful surgery. Smiling about the nightly exercise routine--great work! Hugs.
ReplyDeleteEllie has grown so much and growing up way to quickly. Hope and pray that all the procedures can be done on Thursday. Blessings to all!
ReplyDeleteEm -
ReplyDeleteYou guys are amazing people. A true witness to everyone. Stay strong and know that we are praying for all you, especially Ellie.
Love, Kelly Wolthuis & Family
Ellie will be in my thoughts and prayers tomorrow.
ReplyDelete