Update

Wow, we have been busy here, getting ready for Hannah to come home.

We have completed our trach "training" (ha ha) and have proved to the hospital that we can take care of a baby with a trach. We have filled out pages of paperwork and talked to countless people, lining things up so that we can go home.

Hannah has been doing great, eating well, breathing well. She is now tolerating an HME (the sponge nose on her trach) during the day. Next step: trying the PMV (speaking valve).

We are working around the house, getting things organized and set up for Hannah's homecoming. We are organizing the girls' closet to hold all of their medical supplies. Tomorrow all of Hannah's equipment and supplies are delivered so that I can get them all put away before she comes home.

At this point, it looks like she will be cleared to go home the middle to end of next week. She is stable enough to go home today, but there is red tape that needs to be taken care of before she can come home. We are working to get some daytime nursing shifts scheduled so that I will be able to get out to take one or both girls to the doctor, get groceries, or just do something special with the boys. We will see how it goes, taking one day at a time. Most of you will remember that we were not huge fans of nursing care in our home, but we recognize that having two medically fragile children will present new challenges.

Thank you so much for your support and prayers. We have received many gifts and cards and yummy meals that mean so much to us. We thank you for your faithfulness in supporting and praying for us.

We praise God that things have moved forward as planned and that Hannah will God-willing be home very soon!