Our little pumpkin
Just feeling a little down right now. Ellie just failed her third hearing test and has been deemed to have "profound hearing loss." We're not sure exactly what that entails right now, but it doesn't sound good. It is hard to think about all the times I have sung to her or played her music, and she was not even able to hear it (?) It just doesn't seem fair that she already is trapped in a body without the ability to move very well, but she also cannot hear or speak. Sorry, this has just kind of cast a cloud over my excitement to have her come home.
In other news, we were taught how to use our portable home equipment today. It seems pretty cool. We will have a monitor that is similar to the ones at the hospital in that it monitors her heartrate, breaths per minute, and oxygen saturation. We also learned to use the portable suction machine. Early next week we will have the home equipment delivered along with the supplies we will need. She really is coming home!
I am praying continually for God's healing powers and thanking Him for the miracles we've already seen. Love you.
ReplyDeleteOur little pumpkin is just adorable!
Just read this and had to share:
ReplyDelete"But if it were I, I would appeal to God; I would lay my cause before him. He performs wonders that cannot be fathomed, miracles that cannot be counted." --Job 5:8-9
We will continue to pray for God's healing for Ellie. So sorry for the sad news, I know it is hard to believe when they tell you something else is not right with her. God continues to hold you in the palm of His hand and will continue to hold you their. Know that God has a plan for you and Ellie in all this. He will be glorified through you all.
ReplyDeleteLove and prayers, Gwen
That is very sad news. May we never forget that Jehovah is all powerful and all healing...and that His will is perfect for us at all times. We are praying He will heal your precious Ellie!
ReplyDelete"O God, thou art my God; early will I seek thee: my soul thirsteth for thee, my flesh longeth for thee in a dry and thirsty land, where no water is; To see thy power and thy glory, so as I have seen thee in the sanctuary."
Psalm 63: 1-2
Love in Christ,
Chuck and Laura Wiese
Extra hugs along with our prayers today
ReplyDeleteHey Emily, I just wanted you to be encouraged with the thought that she can feel the vibrations of you singing and feel the love in your arms - that's worth just as much as hearing the sound! *HUGS*
ReplyDeleteI am crying with you as I read your post. The Lord is gracious and He will give you the strength that you need to get over this hurdle too. You are giving Ellie so much love and care, and that is what she needs the most from you right now. Keep on snuggling her. We are praying for all of you.
ReplyDeleteMarleen Flood
Ellie is my constant source of encouragement. "Let not your hearts be troubled." I believe she hears you! Keep the music coming. Many people have "profound hearing loss." They just can't hear so well. It doesn't mean they can't hear at all.
ReplyDeleteI think she loves the music as much as the water.
Love, Hugs and Prayers,
Betsy
Your songs are not wasted--they are for you and she both. They convey your love for her regardless of words heard--and I'm sure that is written on your face each and every time you sing to her. Keep singing, even while sad, and let it comfort both of you. Thinking of you often.
ReplyDeleteWhat everyone else has said here about her still "hearing" you is SO true. Don't stop singing and talking to her - I know she hears it and feels it in some way! Still praying all the time for your family!! Your regular updates mean so much to us.
ReplyDelete~Monica and family
Adam and Emily,
ReplyDeleteThank you for sharing your true feelings, it is O.K. to feel sad. She is still a precious gift. We are still praying for you everyday and amazed at your love.
Mark and Laura Stob
God has more than proven His ability to overcome obstacles in Ellie's life, trusting Him for this one too... even if Ellie really doesn't hear you singing I'm sure she can feel the tune and loves "hearing" you! Love and prayers...
ReplyDeleteAdam and Emily,
ReplyDeleteWe can't wait to hold our little pumpkin (love the cap)!!
Having profound hearing loss doesn't mean she can't hear at all. I'm sure she is able to hear and feel you speaking and singing and praying; God can supernaturally allow that to happen. He loves you and her so much; He is going to bless you through this.
We are praying for strength, comfort and courage as you prepare to bring Ellie home where you all (Noah and Seth too) can love her up. You all are loved so much by God and so many people; bask in it.
Lots of love,
Emily, Your parents are exactly right! Ellie can still feel the love you are giving her, and down the road, there might be options to help her hear better. My little one has mild to severe hearing loss, and he has found ways to let me know his needs, and ways for me to comfort him. (The BIG one is TOUCH!) Little Ellie will be comforted by your touch! Keep on singing!!! You need it, and she does too!!
ReplyDeleteYour love is coming through, loud and clear!!! That's what really matters!
ReplyDelete"The Lord said to him, 'Who gave man his mouth? Who makes him deaf or mute? Who gives him sight or makes him blind? Is it not I, the Lord? Now go; I will help you speak and will teach you what to say.'" Exodus 4:11-12
ReplyDeleteThe Lord is being glorified in and through Ellie's life. She is perfectly made in His image and is already showing all of us how to overcome obstacles in His strength alone. Keep singing!! Praying for all of you.
They took away what should have been my eyes
ReplyDelete(But I remembered Milton's Paradise).
They took away what should have been my ears,
(Beethoven came and wiped away my tears).
They took away what should have been my tongue,
(But I had talked with God when I was young).
He would not let them take away my soul -
Possessing that, I still possess the whole.
-Helen Keller
We and our children and small group are praying for you!
My original tears of empathy are now flowing with tears of joy. What a blessing God's Word is to our lives, to the very point where we most need it. The verses above from Job and Exodus speak so richly of the incredible grace of our God. When you sing to your beautiful little girl, know that the songs are heard by the One who has made her exactly according to His plan and His name is glorified in your loving care. May He richly bless and encourage you even in this new disappointment and enable you to find rest in Him.
ReplyDeletePlease excuse me for commenting, but I've been following your beautiful little girl's progress & praying for her since your cousin, Jen Peel, asked us to pray for all of you a few weeks ago. Yes, the hearing loss is another barrier but just remember she can still see your faces and see your love & emotions thru your faces! Not that it makes it any better or easier. I am in awe of your family's strength and faith. We will keep you all in our continued prayers.
ReplyDeleteVedras we just ran into this with our adopted daughter. There is great hope with hearing aids. If the hearing loss is profound enough, Cochlear implants are possible. See our posts on Therese's hearing
ReplyDeletehttp://www.journeytotherese...
We get hearing aids next Friday. She is 3 and does not speak yet.
Keep singing Emily... hearing loss or no, she hears you!!
ReplyDelete((hugs))
We're still thinking of ya'll and praying for ya'll.
I've been following little Ellie's progress as well, and praying for all of you. I am sorry to read that hearing loss has been added on top of everything else. My son also has hearing loss. If you don't mind my saying, get her fitted for hearing aids as soon as you can. The earlier they are aided, the better their chances of developing normal speech. My son was aided by 4 1/2 months. I knew someone whose baby had hearing aids by 1 1/2 months. Maybe you've already been told this, but my understanding is that there is an excellent program in your area for hearing impaired children. There is another in Ida, Michigan - my son was involved in that one. They were at our house within a week of his diagnosis. Please contact me if I can help you wade through all the resources in Michigan.
ReplyDeleteI came across one of your blog through one of the blogs that I read.. I'm so sorry to hear that Ellie's deaf --- It will get better with time. You see, I'm deaf mom and I have 3 wonderful hearing boys.
ReplyDeleteMy prayer is with your family.