Things have been moving along quite well. We have been told that Wednesday will most likely be the day that Ellie is discharged! All of a sudden it seems so close. We are planning on "rooming in" on Sunday night. We will get our own room to share with Ellie and get used to doing all of her care. It will be exciting to get a taste of what it will be like to care for her at home.
We have been notified that we are approved for 10 hours of nursing a day. We have chosen to use those hours at night, probably from 10pm to 8am. We can always rearrange things as we get used to it.
This next week will be a very exciting and eventful week. Before we leave the hospital, we will meet with home equipment people, receive our countless boxes of supplies, meet with the private nursing company, and tie up any loose ends at the hospital.
There are a new round of tests coming up. The neurologist has ordered samples to be sent to Mayo to test enzymes for metabolic disorders. There are a lot of different metabolic disorders, and many of them are pretty scary. I don't think we will know anything about them for a while, but pray that it will not be bad news. We have not talked to the neurologist about the likelihood of Ellie having a metabolic disorder or why she ordered the tests, so that is on our list of things to do before we are discharged.
So, praise God that we will all be under one roof very soon! It is exciting and scary at the same time. We are not sure what it will be like to care for Ellie by ourselves; we are not sure what it will be like to have nurses in our home while we are sleeping; we are not sure if we will ever dare venture out into the germ-filled world :-). So many unknowns, but one thing we do know: God is watching over us, and He cares so much for Ellie. We know everything is in His plan.
peace-
Emily
What an Angel! She is so adorable! Glad Ellie will be home this week- thats where she belongs!
ReplyDeleteI can't believe she will be coming home in a few days! That is so exciting! We continue to pray for you and your family.
ReplyDeleteWe are glad to hear that she will be home soon. We look forward to seeing her in the environment that she should be in!!
ReplyDeleteYou still have a few more days to use us for watching the boys if you want. (Of course, we can take them when Ellie is home as well- we will try not to lose any of Noah's cars this time.)
Wow!! We rejoice with you at the good news, and continue to hold you in our prayers as you gather your entire family under one roof! She is beautiful!
ReplyDeleteAnother beautiful picture of your beautiful girl.
ReplyDeleteI am praising God for Ellie's continued progress.
Home is a wonderful word!
We are so glad to hear that a plan is in place to get your whole family under one roof! Please know that our thoughts and prayers continue with you all every day.
ReplyDeleteThe Krumwiede Family
That is so wonderful! My prayers are with the entire family and your upcoming adjustments. God be with you.
ReplyDeletePeace,
Jen
What a little sweetie! She looks almost like she's trying to suck her thumb in that picture, so cute... Praying for a smooth transition for your whole family this week.
ReplyDeleteEllie is beautiful...I am sooooo excited for all of you. My prayers are always with you
ReplyDeleteShe is just adorable! Praying for you often and we are so happy that soon you will all be together.
ReplyDeleteLove and hugs, Julie & Philip