Eleanor has been off of CPAP for two and half days without incident! Translation: God is working and answering prayer.
Eleanor is also doing well on her feedings. Today her feeding time has been compressed from a continous drip over three hours to two hours drip and one hour off. Translation: God is working and answering prayer.
Emily and I are so pleased with the progress over the past few days and are thankful to God for his tender mercies and sustaining comfort.
Prayer Requests:
1. We haven't heard back on the genetics test for Myotonic Dystrophy yet. It has been out for over four weeks and was supposed to be back in two weeks. Our prayer is that this test would come back negative, for the prognosis is generally poor.
2. We would like Eleanor to come home as soon as possible. This is not only because we want to love her and cuddle with her all the time, but for her own health and wellness. As winter approaches, the risk for catching all kind of illnesses increases. Ellie's risk is doubled simply because of her breathing issues. And beleive it or not a hospital is not the place to be at this time of year. Eleanor is safer at home with our germs, not everyone elses. ;)
Eleanor may be coming home sooner than the projected six to eight weeks. A lot of this depends on whether skilled in home nursing care can be lined up. This process can take a lot of time, and can be frustrating. The staff at Devos Children's have been working hard to line this up for us.
So we rest in the very capable hands of our Lord and Savior Jesus Christ.
For His glory.
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Amazing! I will pray that God continues to show favor to your family.
ReplyDeleteI was just going to e-mail you and ask how Ellie was doing all this time off the CPAP, and I was so glad to check the blog and find an answer! We are so glad to hear she is being such a trooper and doing so well with her breathing and feeding. We continue to pray for her many times each day, and for her precious parents and brothers as well. May God continue to strengthen Ellie and sustain her loved ones as they anticipate bringing this sweet little girl home. Praying that this will be sooner than anticipated......
ReplyDeleteWith love from the Hunters
It was so wonderful to spend time with you guys and little Ellie last night. Looking forward to hanging out with you all in your own home. Love you guys.
ReplyDeleteYes, God is answering prayers for you and little Ellie. So glad to hear the progres she is making. We will pray she can come home sooner than expected. She looked so cute in Grandma O's arms. We pray that your family can remain healthy thru this time also.
ReplyDeleteOh PRAISE THE LORD!!!! I am so thrilled that Ellie is doing so much better! What a strong and determined little girl she is! Part of our morning school rhythm is to pray for Ellie. Mo has taken that upon herself to make sure we pray for Ellies recovery and coming home to where she needs to be.
ReplyDelete"The one that is in your is greater that the one that is in the world." I John 4:4 - To God be the Glory!
ReplyDelete