Ellie lives in a room with 7 other babies. There are 4 along each wall. Here is the view of her side of the room. She has been living with the two boys along the back wall since she arrived at DeVos. We have gotten to know the babies quite well, but hardly ever see the parents. We have different visiting schedules I guess.
Here is Ellie's area of the room. Believe it or not, it feels like home to us now. You can see her crib, moniters, the chair that we hold her in, and all of her supplies.
Here is a picture of Ellie connected to the CPAP vent.
Here is Ellie right after I shocked her with the flash from the camera. Anything to get her to open her eyes! She is hooked up to the humidification collar in this picture-breathing room air on her own!
This Week
This week will be a busy one for us. Today the surgeons will come to explain the G-tube surgery and get our consent. Tuesday is the surgery. Then Ellie will be recovering. We hope that as soon as she is feeling a little better they will quickly wean her off of the vent.
This week we also start our trach care training. They will teach us to suction out her trach, change the trach ties and dressing, and eventually how to change out the trach itself.
We are so thankful for the progress that Ellie has made the last week and can't wait to see what she will do next!
peace,
Emily
What a beautiful baby girl, & what a little fighter.We will be praying for another successful surgery!
ReplyDeleteNice shirt... soy? :)
ReplyDeleteLove you guys. See you soon.
Adam and Emily,
ReplyDeleteI don't know if you remember us but we were members of DuttonURC. We now attend Corinth Reformed and heard of the birth of Ellie through your family and friends there.
I've read your postings and it brings back many memories. We have a 12.5 year old daughter Nicole who was born with spina bifida. We spent many days and nights in the NeoNatal and as I look at your pictures, I can smell the smell and hear all the beeps and buzzes.
Ken and I can also testify about the peace that passes all understanding. I thank God every day for His continued peace, this peace that the world calls denial.
Our family is praying for all of you. Thank you for keeping us updated so we know what to pray for specifically.
Love,
Ken, Cindy, Jamie and Nicole Seif
PS Yes, breast is best!
Love the pic's, we will continue to pray as it looks like you have quite the eventful week.
ReplyDeleteLove, Rene
Dear Emily and Adam,
ReplyDeleteIt's good to see where Ellie is "living".
Love and many prayers, Julie & Philip
Waaa--hooo!!!
ReplyDeleteI'm not sure who sounds/looks more peaceful. You or her! :o)
Beautiful baby, beautiful family, nice ride!
Dear Emily and Adam,
ReplyDeleteWhat a beautiful, precious baby girl! We have been reading your blog since Ellie was born. Ellie and your entire family have been in our prayers. Now we will pray for successful surgery tomorrow. May you feel God's arms around you.
Bill and Sandy VanderPloeg
What a beautiful little girl you have. I hope that you don't mind, but I clicked the link to your blog from Nancy's page. Please know that we will be praying for your family and will certainly be checking in often.
ReplyDeleteI know you do not know me, but please do not hesitate to ask if there is anything I can do to help....
In our thoughts and prayers-
The Krumwiedes
Chad, Kristin, Delainey, Shelby and Avery
I'll be thinking of you and praying for you all day today, little Ellie Rose. I love you.
ReplyDelete