Sorry for the lack of updates. Yesterday was a busy day as I came home from the hospital and the boys came home from camping. We had a nice evening together reconnecting with the boys and getting settled at home.
Hannah is still doing well, maintaining her breathing on CPAP. She has had some trouble tolerating her feedings, so they took a little break for a day or so and now have re-started them again this morning. She seems to be doing better with them today. She is being fed through a tube that goes down into her small intestine.
We have been waiting for consultations from specialists and they are all trying to come as quickly as possible. Hannah has seen genetics, neurology, urology, and opthalmology over the last few days. We are eager to see the ENT and see what he has to say about needing a trach.
Hannah had an MRI on Sunday which showed very similar to Ellie's MRIs, revealing decreased white matter. The girls appear to have many similarities so far.
The plan is to wait until we get some information back from various specialists in order to make a decision on a course of action. We are hoping that we can be out of the hospital in less time than Ellie's stay.
Thank you for the prayers and words of encouragement. We will keep you updated as we learn more.
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Thank you for the update, Emily! I'm glad you and Adam and the boys got to have a nice evening together.
ReplyDeleteEmily, your family is in my prayers. Hannah is so beautiful! Thank you for the updates. Hoping for good results from the ENT doctor, and that Hannah will not need a trach.
ReplyDeleteUncle Vede, and Auntie Em.
ReplyDeleteWe are praying everyday and we love you so much.
In prayer constantly that you will be given strength sprituaally, emotioanlly and physically. Glad that you had a nice evening together with the boys. Praying the Lord will bring you good news through the drs. and wrap you in his loving arms. Thank you so much for the updates. It must be exhausting in all that you are dealing with right now.
ReplyDeleteThanks for the update! We are in prayer for you all and little Hannah :) We are not gone to family camp (like everyone else) if there is anything you need - PLEASE let me know!
ReplyDeleteHey, we are continuing to pray for you. We are not going to family camp, so I would love to do something to help you out- whether it's running errands for you or watching the boys- whatever you need. Now that we are neighbors within walking distance, please feel free to contact me.
ReplyDeletepraying hard - the Lord is in control.
ReplyDeletelove you all so very much!
Praying for you Adam & Emily. You are strong individuals and we admire you for that. May the Lord show you his blessings each and every day. Hannah is beautiful. ...many prayers & much love...
ReplyDeleteSo glad to read the update. you and the family remain in our prayers. Know of our love and support!
ReplyDeleteYou are all in our thoughts and prayers. We will be praying for the best!
ReplyDeleteThank you for the update! We are praying that Hannah can be home and in your arms soon! I am sure this is all so emotionally and physically draining. Praying that the Lord will give you His peace, strength and tender mercies for every single moment. HUGS
ReplyDeleteAdam & Emily,
ReplyDeleteI am grateful for your updates - I have the same desire as Heidi Hoven - we are also home this week - and would love to be of help in any way you need. PLEASE don't hesitate to call for anything - a meal, an errand, etc. Praying for you all.