Eleanor had a little trouble breathing this morning while Emily and her parents were visiting her. It was scary to watch your child struggle for breath and very difficult to have no power in your own hands to help her. God in his grace settled things down and Eleanor is resting peacefully now.
The hard part today is Emily being discharged from the hospital and now going home without Ellie. We are able to visit Ellie at Saints almost any time of the day and for as long as we want. Ellie will stay at Saints until there is room at Devos Childrens Hospital. At Devos there are neuro neonatologists and other specialists that can work on determining the cause of Ellie's trouble.
The good news is that Ellie is still feeding via the feeding tube, and the next steps are to continue increasing the volume of mamas milk she gets through the feeding tube.
You can continue to pray for:
1. Ellie's continued improvement with breathing, feeding, moving
2. Ellie's safe transfer to Devos (date unknown, looking like mid next week)
3. Adam and Emily and family coping
4. Balancing Emily's recovery, visiting Eleanor, and having some semblance of a normal family life for our boys.
I was reading about wisdom in Proverbs chapter 8 last night. It says "Blessed is the man who listens to me, watching daily at my doors, waiting at my doorway." Right now we wait at that doorway seeking wisdom from on high during a time full of so much uncertainty.
God is good all the time! He is our ever present hope.
Adam
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What a struggle you are going through, but yet you are all so strong in the Lord. I truly am in awe of you and your strength!
ReplyDeleteI pray daily for you and have faith that God will work awesome miracles in your live and Ellies.
Praying for you, Emily, today. Call me if you need someone to talk to. You know where to find my number. ((hugs))
ReplyDeletePraying for you all.
ReplyDeleteThank you for the updates, we are praying for all of you, especially today as Emily heads home. Praying your whole family will be together soon!
ReplyDeleteDoug and I pray for Ellie and your family several times a day. Even though we can't imagine what you are going through, know we are walking beside you through this. PLEASE let us know if there is anything we can do. We love you.
ReplyDeleteThank you for the updates. That must have been so scary to see Eleanor struggle with breathing. I cannot imagine how hard it must be for you to leave your baby at the hospital. I am thinking of you all the time!
ReplyDeletewe pray without ceasing, we love all 5 of you. touch her hand for us.
ReplyDeleteWe continue to lift all of you up in prayer. Thanks so much for the updates. Verses that are continually coming to me are Psalm 63:7+8 Because you are my help, I sing in the shadow of your wings. My soul clings to you; your right hand upholds me.
ReplyDeleteAdam & Emily,
ReplyDeleteWe continue to pray for you, Ellie and the boys. Pleas call us if we can help with any thing at all!
Paige & Bill Kamp
Adam & Emily,
ReplyDeleteI am continuing my endless prayer for all of you and Ellie. Try to find comfort in knowing that you are leaving her in good hands, and she will be watched over with great attention. Find comfort in your faith and family at this troubling time. Hugs to all of you.