Well it has been a long day -- Sorry we haven't updated sooner.
Today we met with a genetisist and pediatric neurologist. I can't say that we have any answers yet on Eleanor's condition, but we are beginning the long process of gathering information and doing tests.
Our meeting with the genetisist was basically a time to collect family history from me and Emily. They were obviously most curious about whether we had anyone in our family with low muscle tone. Blood work from Eleanor has been and is being sent to Mayo Clinic for genetic analysis. We may hear more in about a week.
We also met with a neurologist who looked over Eleanor and was doing some reflex tests. Eleanor had little to no reflex response. Our neurologist said that there is cause for hope in Eleanor's case and that we should not lose that hope. She was happy to see Eleanor's reaction to stimuli (getting unhappy) and moving her body to be in a more comfortable position. What is going on in Eleanor's body is still unclear.
So we are just beginning the journey in discovering and learning more about Eleanor.
Pray for Ellie's continued progress, healing, and recovery.
We rest in God's most capable hands. Thank you for your encouragement and prayers!
Adam & Emily
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Thanks for keeping us updated so we can pray more specifically!
ReplyDeleteI am so glad that you live in this city, with such a great children's hospital right here. What a blessing that is at a time like this. And I was just hearing stories about a week before Ellie was born about the excellent work that has been done in Grand Rapids for people with low muscle tone.
ReplyDeleteWe prayed for Ellie tonight in our Harvest small group and will continue to pray for her. This is the passage I've been thinking about recently when she comes to mind:
"Therefore, strengthen the hands that are weak and the knees that are feeble, and make straight paths for your feet, so that the limb which is lame may not be put out of joint, but rather be healed."--Hebrews 12:12-13
It's in regards to discipline, but then you are all undergoing that right now, too.
I'm so grateful that God cares for children who are even weaker and more dependent than they are "supposed to be"--and really, that's what we all are, isn't it?
"God has chosen the weak things of the world to shame the things which are strong"--I Corinthians 1:27b
Hi Emmy, Vede, my little guys, and Ellie Rose.
ReplyDeleteI love you guys so incredibly much and cannot wait to see you all soon. Just know that you are in my thoughts and prayers constantly.
Your sister and aunt, Julie
Adam and Emily:
ReplyDeleteThanks again for the ongoing journal. We continue to pray. The pictures are wonderful!
Steve and Susan Vanderwey
Adam and Emily-
ReplyDeleteYou and your family are in our hearts, thoughts and prayers! Please be sure to let us know if there is anything at all we can do to help you!
Ron and Keri (Tiemeyer) Banfill
Adam and Emily,
ReplyDeleteIt is great getting the updates you so faithfully post. We are keeping you all in our prayers.
Love, Aunt Bette and Uncle Charlie