Tonight Emily was able to hold Eleanor for the first time! We were nervous about whether she would be over stimulated by moving. But no surprise she was very comfortable with her mama, hearing her heart beat, and cuddling close. Eleanor was so peaceful and actually fell asleep on Emily's chest. It is hard to convey how exciting that was for us and what a blessing.
Other good news is that Eleanor's feeding tube was pushed down into her small intestine. This will keep her from asperating her food. She also had her iv removed from her belly button and put into her hand. This step with the iv allowed us to hold her and minimizes the risk of infection.
Eleanor's hypotonia (low muscle tone) and her swallowing remain a concern. For this we will need Eleanor to see specialists at Devos Children's Hospital to help find a cause.
Keep Eleanor in your prayers! Psalm 77: "Our God is a God of miracles."
Adam
We're so thankful for this news! How wonderful it must have been to finally feel that precious little body against yours, and for Ellie to feel the warm embrace of her Mama's arms.
ReplyDeleteContinuing to pray for you and entrust you to our God of miracles....
Lynne & Kristin
and the Hunterfam
Adam and Emily,
ReplyDeleteYou have been in our continual thoughts and prayers since Wednesday. Words cannot express how our hearts are breaking for you and yet rejoicing over every little bit of good news. We are praying for a miracle for Ellie and strength for all of you as you try to hang on through this roller coaster of emotions.
Love and prayers,
Mark & Laura Stob
Praise God for the continued progress. Those pictures are some of the most beautiful pictures I've ever seen! We love you guys and we are praying for miracles!
ReplyDeleteLove & Blessings,
The Almas Family
Praise God!!!!! I am so happy that things are going so well for little Ellie. Stay strong and know that you all are well loved.
ReplyDeleteWe are praying with you for Ellie. Praise God for his work.
ReplyDeleteRon & Brenda Heys
(Harvest)
Hi. Not sure you were able to read my other emails i have sent to you to your yahoo account. But since we have heard about your daughters birth last week I have informed others at Dutton United Reformed and we all have been praying for so many things for your family. The Lord is answering these prayers. Emily is healing well, your daughter is breathing well, you are moving to DeVos, you were able to hold and bathe your daughter, and the list continues. May you continue to see Gods hand in your moment by moments each new day. He has your family in the palm of His hands. May you be comforted and upheld by all of the people praying for you.
ReplyDeleteThose pictures brought tears to my eyes...
ReplyDeletePraying continuously here...
Those pictures brought tears to my eyes. I am so happy to see you holding her! :)
ReplyDeleteSuch sweet pic's Em. Can't even imagine how wonderful that felt to hold that sweet little girl.
ReplyDeleteLove, Rene